Telemedicine platform for rare diseases
The first telemedicine platform specifically for rare diseases
The first telemedicine platform specifically for rare diseases
Telemedicine offers healthcare professionals innovative solutions for the care of people with rare diseases.
RareLink ist in enger Zusammenarbeit der Department of Neurology at Charité Berlin und dem E-Health-Spezialisten Qurasoft aus Koblenz entstanden. Die Plattform bündelt alle wichtigen Telemedizin-Tools in einer Plattform und ermöglicht medizinischem Fachpersonal eine umfassende Fernbetreuung der Patient:innen.
This not only improves medical care enormously, but also creates new opportunities for research.
Areas of application
Areas of application
1. patient care
Ärzt:innen nutzen RareLink, um ihre Patient:innen telemedizinisch eng zu betreuen: Sie können den Krankheitsverlauf aus der Ferne beurteilen, schnell auf Verschlechterungen reagieren und lange Anreisen der Patient:innen reduzieren.
2. clinical research
RareLink offers researchers the opportunity to collect continuous and structured real-world data from patients' everyday lives for clinical studies - from vital parameters and laboratory values to Patient Reported Outcomes (PRO).
The RareLink modules
The RareLink modules
Telemonitoring
Telemonitoring of vital signs enables the introduction of personalised healthcare for chronic patients - close-meshed, location-independent & data-based!
Video consultation
Die datenbasierte Videosprechstunde für fundierte Diagnosen und Behandlungsentscheidungen - sicher & abrechenbar (zertifiziert nach BMV-Ä).
Medication plan
Control your patients' medication remotely and monitor therapy adherence.
Chat
You can use the chat function to communicate directly with your patients - in compliance with data protection regulations and without complications. Patients can send and receive messages via the app.
Questionnaires
Have your patients fill out questionnaires regularly to get an idea of how they subjectively feel their symptoms or illness is progressing.
Documents
Exchange documents with your patients such as findings, laboratory results, referrals or emergency plans via the document folder.
How telemonitoring works with RareLink
How telemonitoring works with RareLink
The RareLink platform works by combining sensor technology, a patient app and web-based software for doctors.
Sensor technology
Patients record their vital signs using digital measuring devices, which transmit the measured values to the RareLink platform in real time.
Patient app
About the MyaLink-app (powered by RareLink), patients can enter vital signs manually and communicate with their doctors, exchange documents, and much more.
Web system
The RareLink software visualises the recorded vital signs and informs the practice team if previously defined limit values are exceeded.
High-precision measurements thanks to digital sensor technology
The devices, wearables and health trackers connected to RareLink ensure precise measurements, fast data transmission and easy use by patients.
You can monitor these vital signs
With RareLink you can monitor a wide range of vital parameters. This makes the platform highly customisable for numerous indication areas.
Use case: MyaLink
The app MyaLink is based on the RareLink telemedicine platform. It connects people affected by the rare neurological disease myasthenia gravis with medical specialists at the Charité Berlin Neurology Clinic's care centre.
Members of the German Myasthenia Society can download the self-monitoring app for iOS and Android free of charge. A code is required for activation, which members can obtain from the DMG.
Contact You us
Do you have questions about the RareLink telemedicine platform for monitoring rare diseases, about MyaLink or would you like to cooperate with us?
We look forward to hearing from you!
Contact form
- Vital signs monitoring
- Monitoring von Patienten-Wohlbefinden via Fragebogen
- Videosprechstunde (zertifiziert & abrechenbar)
- sicherer Chat
- Standardised national medication plan
Alles inklusive
69 €/Monat
zzgl. Mwst.
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- Vital signs monitoring
- Monitoring von Patienten-Wohlbefinden via Fragebogen
- Videosprechstunde (zertifiziert nach BMV-Ä)
- Chat
- Standardised national medication plan
Alles inklusive
69 €/Monat
Erstgespräch vereinbaren
Gib hier deine Überschrift ein
Im Metternicher Feld 30c
D-56072 Koblenz on the Rhine
About RareLink
RareLink is a spin-off of Charite - Universitätsmedizin Berlin and Qurasoft GmbH from Koblenz.
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